Massachusetts Lyme Reporting

May 10th, 2021
lyme
In putting together yesterday's post on Lyme disease prevalence I noticed something very strange with Massachusetts:

It's even more striking if you look at a map (2018):

There's no way Lyme follows state borders like this; it has to be some sort of data issue.

Looking over several years of CDC maps, the year that Massachusetts starts looking different matches up with the huge drop in the chart above. Compare 2015:

To 2016:

The only public explanation there seems to be is this short news article. In 2016 the MA Department of Public Health "stopped spending time and resources trying to track down the clinical information, instead relying solely on positive lab results to give a more accurate estimate of Lyme disease case numbers."

The CDC gets their information from the states, and in this case requires both a clinical diagnosis and a positive test. MA, apparently uniquely among the states, has decided that when compiling statistics confirming a clinical diagnosis is extra work that doesn't improve accuracy. So MA doesn't generally have the stats it would need to file with the CDC, and instead of marking MA as "no data", the CDC publishes the trickle of reports that it does get from MA.

I don't know whether the CDC or MA is being more unreasonable here, but the effect is pretty bad: user-facing websites like TickCheck show MA as now having low Lyme levels. The CDC does not even include a note in their FAQ to say MA data shouldn't be trusted.

Referenced in: Massachusetts Tick-Borne Disease Distribution

Comment via: facebook, lesswrong, substack

Recent posts on blogs I like:

Shoshannah Tekofsky on how AI agents suck at personality tests, don't express surprise, and lie to themselves

Can you introduce yourself for people who don’t know who you are?

via Thing of Things February 11, 2026

2025-26 New Year review

This is an annual post reviewing the last year and setting intentions for next year. I look over different life areas (work, health, parenting, effectiveness, etc) and analyze my life tracking data. Highlights include a minimal group house, the usefulness…

via Victoria Krakovna January 19, 2026

Why I Don't Think My Braces Were Worth It

A couple weeks ago, I got my braces off. I kind of wish I had never had them, though. When I was younger, two of my teeth were sticking out, and they looked kind of funny. I thought that my teeth were just fine, and I didn't want to get braces. But s…

via Anna Wise's Blog Posts January 3, 2026

more     (via openring)